Showing posts with label Living Disabled. Show all posts
Showing posts with label Living Disabled. Show all posts

Holidays in New York with Fashionable Canes

December 21, 2024
A Vintage Nerd, Fashionable Canes, Living Disabled, Retro Lifestyle Blogger, NYC Blogger, Holidays in New York, Disabled Fashion, JCrew Green Coat, Disabled in New York

There isn't anything like the holidays in New York City. Despite the crowds of visitors, the city is a delight to spend time in. Exploring all the iconic sights and trying as many hot chocolate drinks as possible-the holidays in New York are magical. 

For those who are disabled (or simply needing a walking aid) commuting through the city and navigating through the busy streets can be tricky. For this visit I took my fancy rhinestone cane by Fashionable Canes-which you can find HERE. It's sturdy, pretty, and can withstand the long walks on city streets. 

If you would like to get your own fashionable cane you can use this link HERE 

A Vintage Nerd, Fashionable Canes, Living Disabled, Retro Lifestyle Blogger, NYC Blogger, Holidays in New York, Disabled Fashion, JCrew Green Coat, Disabled in New York
A Vintage Nerd, Fashionable Canes, Living Disabled, Retro Lifestyle Blogger, NYC Blogger, Holidays in New York, Disabled Fashion, JCrew Green Coat, Disabled in New York
A Vintage Nerd, Fashionable Canes, Living Disabled, Retro Lifestyle Blogger, NYC Blogger, Holidays in New York, Disabled Fashion, JCrew Green Coat, Disabled in New York






Walking in Style with Fashionable Canes

May 16, 2024

A Vintage Nerd, Fashionable Canes, Living with CMT, Stylish Canes, Blog Collaborations, Fashion stix, Fashionable folding canes
I know from personal experience that having to use a walking aid comes with challenges-both physical and mental. Accepting the use of a walking aid can be tricky. But once you do it then becomes all about finding the right walking aid. 

Walking aids don't have to be some old clunky thing you use to help you walk better. It can become a part of your personal style. Fashionable Canes has canes that can give you the support you need while also being stylish. 

My new cane from Fashionable Canes is lightweight, foldable, and stylish. I tried out my new trusty cane the other day while enjoying an outing in the city with my family. It felt sturdy and gave me all the support I needed while walking around the busy streets of Manhattan. Having the wrist strap on my cane also came in super handy when I needed to free my hand to do other things. 

If you happen to need a walking aid to help you out during the day there is no reason why you can't do it in style. Are you interested in getting your own fashionable cane? You can get one by using this link HERE as well as my code avintagenerd-which will give you 15% off your purchase. This code will expire early July 2024 so if you do acquire one of your own, let me know how you liked using it.

A Vintage Nerd, Fashionable Canes, Living with CMT, Stylish Canes, Blog Collaborations, Fashion stix, Fashionable folding canes
A Vintage Nerd, Fashionable Canes, Living with CMT, Stylish Canes, Blog Collaborations, Fashion stix, Fashionable folding canes
A Vintage Nerd, Fashionable Canes, Living with CMT, Stylish Canes, Blog Collaborations, Fashion stix, Fashionable folding canes
**In collaboration with Fashionable Canes: All my opinions are my own**

10 Steps To Living Your Best Life as a Disabled Person

October 18, 2023
A Vintage Nerd, Living with Charcot Marie Tooth, Disability Awareness, Living Your Best Life as a Disabled Person, Retro Lifestyle, Vintage in New York

Last month was Charcot-Marie-Tooth (CMT) Disease Awareness Month. As the years have progressed so has my disability. Little by little I have discovered and figured out different ways to ensure that I live the best life possible as a disabled person. These tips are simple and easy to follow. They can be applied to anyone, not just disabled people. But I try to follow these daily and remind myself that despite my disability and challenges, I deserve a good quality of life like anyone else. I hope these tips help you start living your best life as well.

  1. Embrace your disability for what it is. Acceptance is key. 
  2. Use whatever walking aids or gadgets that can help you.
  3. Don't dwell on what you can no longer do.
  4. Ask for (and accept) help and support.
  5. Make your health a top priority.
  6. Find joy in the things you can do.
  7. Don't compare yourself to others (or to your past self). 
  8. Set realistic goals—and be patient.
  9. Remember that you have to right to have the best life possible.
  10. Find things to do that give you meaning and purpose.

Disability Pride is Everyday

July 31, 2021
A Vintage Nerd, Vintage Nerd, J Crew Green Dress, Retro Plus Size Fashion, Retro Lifestyle Blog, 1964 World's Fair, Queens World's Fair Globe, Disability Pride Month, CMT Fashion, Disability and Fashion

July is Disability Pride month. Its a time when those of us who are disabled share about our disability and educate those who want to know more. Its a time when the disabled can show their pride about their condition and how they live with their challenges. These are some photos I had taken at the World's Fair Globe for my 10th blog anniversary shoot. I knew I wanted to share some pride in my leg braces so I choose to have extra fun during my shoot.

I am so grateful that I am at a place in my life where I can accept my disability and the use of my leg braces. Fighting myself and wanting to be accepted as "normal", are things I wanted for a moment when I was in my early twenties. It took me a long time to get to where I am but I am here because I put in the work. I am here because I choose to go through the process of loss, anger, frustration, and fear. All those ugly thoughts and feelings that we don't want to experience. I chose to go through them and be on the journey instead of avoiding it.

It wasn't easy. There was a lot of pain, suffering, and loneliness that came with sorting through the challenges of having a disability. But once I went through them I was able to free myself of what I thought the world wanted me to be and just be ME.

On this last day of Disability Pride Month I want to share with you all that for me, every day is disability pride. Every day I choose to live with pride for the body I was given and find joy in my days as they are. 

If you interested in learning more about my disability, Charcot-Marie-Tooth Disease, you can find more information HERE.

A Vintage Nerd, Vintage Nerd, J Crew Green Dress, Retro Plus Size Fashion, Retro Lifestyle Blog, 1964 World's Fair, Queens World's Fair Globe, Disability Pride Month, CMT Fashion, Disability and Fashion
A Vintage Nerd, Vintage Nerd, J Crew Green Dress, Retro Plus Size Fashion, Retro Lifestyle Blog, 1964 World's Fair, Queens World's Fair Globe, Disability Pride Month, CMT Fashion, Disability and Fashion
A Vintage Nerd, Vintage Nerd, J Crew Green Dress, Retro Plus Size Fashion, Retro Lifestyle Blog, 1964 World's Fair, Queens World's Fair Globe, Disability Pride Month, CMT Fashion, Disability and Fashion

Living Disabled: Disability Pride Month

July 23, 2020
A Vintage Nerd, Vintage Blog, Retrostyle Blog, Retro Fashion Blog, Disabled Fashion, Braces and Fashion, Leg Braces and Fashion, Sixties Style, Vintage Girl in a Modern World, July Disabled Pride Month,  Disability Awareness

Did you know that July is Disability Pride Month? According to the site  AmeriDisability, "Disability pride" has been defined as accepting and honoring each person's uniqueness and seeing it as a natural and beautiful part of human diversity. The first Disability Pride Day was held in 1990 in celebration of the Americans with Disabilities Act (ADA), a landmark law which was signed on July 26, 1990. This July marks the 30th Anniversary of this landmark law which is a civil rights law that prohibits discrimination based on disability. 

Despite living with CMT my whole life there are so many things I still need to learn about what it means to live with a disability. I can tell you from what I have learned so far is that despite looking or acting different we all want the same things those without disabilities want. We don't like to be treated differently but we do want to be understood that we need help in ways others may not. We want all the opportunities that others want and despite our limitations, we are very much willing and capable of working hard for them. 

A disability didn't stop the blind, deaf, and mute Hellen Keller from learning how to read, write, and learn. She eventually became an author, political activist, and lecturer and the first deaf-blind person to earn a Bachelor of Arts degree. A disability didn't stop the wheelchair bound Franklin Delano Roosevelt from becoming President of the United States. In 1921 he contracted a paralytic illness that left him permanently paralyzed from the waist down. There are so many amazing humans who lived with disabilities and still strived to make their dreams come true just like everyone else. People like Steven Hawking (ALS), Andrea Boccelli (Blind), Frida Kahlo (Polio/Spinal Injury), Itzhak Perlman (Polio), Christopher Reeve (Paralysis), Francisco de Goya (Deaf), and John Milton (Blind) just to name a few.

But how many other famous individuals had or have disabilities but don't dare tell the world about them for fear of limitations that can be placed on them? When you are growing up with a disability you are not normally told that anything is possible for you. I remember when my grandmother's acquaintances would ask me what I wanted to do with my life and depending on the age I would say a ballerina, an astronaut, a wife and mother. Then their faces would get all sad and they would tell me that those things were nice to hear but I knew from the way they acted that they believed that I wouldn't be able to do anything special with my life. They were wrong.

The truth is that a disability can and will bring daily challenges into your life. Sometimes they are hard to deal with, burdensome, and scary. But with challenges also comes the opportunity to learn to see life from a different angle, have a larger capacity for empathy and patience, and make you braver than you ever imagined.

Trying to make your dreams come true and living with a disability is like trying to swim against the waves of the ocean everyday, all day long. Its exhausting both physically, mentality, emotionally, and spiritually. There are two ways that you can handle this; you can either complain, have it consume you, and allow it to bring misery into your life or you can learn how to accept the challenges, learn to never give up, and find the positives. There will be hard days but I have chosen to be on this journey with CMT as my companion, not my enemy. 

I always tell my children, life is about choices. I don't know why or how sometimes but I have always chosen to move forward and dream big. Yes, I have suffered from extreme loneliness, pain, and heaps of fatigue but I know I am not alone. In this big world we all suffer to some degree, they say its a part of our human condition. So this human can share with you today that I am proud of being different. I am proud of my struggles and how I have confronted them. I am proud that with my disability in tow I have accomplished a great deal in life and know I can accomplish even more.

Try to remember this as you join those you know in this months Disability Pride Month, that denying our differences is denying the truth of who we are. Celebrate them and celebrate yourself.

For more information on what Charcot-Marie-Tooth Disease (my disability) is you can learn more HERE and HERE.

I Am CMT Strong

June 19, 2019
A Vintage Nerd, Vintage Blogger, Blogger with Disability, CMT, Charcot Marie Tooth Disease, CMT Warrior, CMT Warrior Tshirts, CMT Awareness, Retro Tees, Retro Blogger, CMT Strong, I Am CMT Strong

Remaining strong under challenging circumstances can take a toll on anyone. We all deal and manage our struggles in different ways. The key is to face them and remain strong.

When I think back on all the things I have already accomplished I am honestly left in awe because I cannot believe that I despite the pain I kept going. These days I think its invaluable for me personally to look back and take notice of my accomplishments because of two reasons; (1) I tend not to acknowledge or make a big deal of anything I do (2) walking has become more painful this past year.

I think in reflecting on all the good done for oneself can help remind us that we have been strong. Because of that  you can remain strong even if things have gotten a little bit harder.

What I have is called CMT, Charot-Marie-Tooth Disease and they are a few types. The type I have affects the peripheral (main) nerves down my arms and legs affected my hands and feet the most. Our nerves conduct our muscles and if you have weak nerves like me then you will have very week hands and feet. Your body is an amazing thing because to make up for these weaknesses other parts of your body do extra work like my hips, thighs, knees, and forearms have.

A Vintage Nerd, Vintage Blogger, Blogger with Disability, CMT, Charcot Marie Tooth Disease, CMT Warrior, CMT Warrior Tshirts, CMT Awareness, Retro Tees, Retro Blogger, CMT Strong, I Am CMT Strong

Having CMT comes with a slew of challenges for example, surgeries, wearing plastic leg braces daily, difficulties with my hands, inability to run, difficulties going up stairs, walking, and standing, poor balance, and my least favorite of all, chronic fatigue. Once the fatigue comes it tells your body to shut down and rest right now. Imagine that and having to tend to three young children everyday. It honestly drives me nuts because I wish I could just tell my body to keep going but unfortunate it won't listen to that. It is what it is.

I firmly believe that life is about choices and you have to make the choice to remain strong. Its okay to complain and its okay to feel frustrated and even angry. But getting through the day means you have to choose to kick some butt. So everyday I choose to get up, get dressed, and get going. Some days are kind to me and others are rough. I work hard at finding the joy and positives in my day because I choose to not be miserable about my circumstances.

Being CMT Strong means so many things to me. It means accepting your body for what it can't and can do. It means that every year that I go through physical changes also means that every year I have to reevaluate how I choose to deal with them. It means educating my loved ones often on my challenges. It means allowing myself to be scared, weak, and dependent on others. It means sharing with others my pain and with that finding constant humility. And it also means finding pride in daily accomplishments and finding joy in the small moments.

I am CMT Strong and I am hear to share my journey with all of you when I can along with my long standing passion with vintage. If you would like to spread CMT awareness you can find t-shirts and accessories here at CMT Warrior. The tee I am wearing is very comfortable and it comes in all sorts of designs. I chose this one because of the Rosie the Riveter inspired imagery and the positive message it has. You can also find CMT Warrior here on their Instagram.


                                  **This post was Sponsored by CMT Warrior: All my opinions are my own.**

8 Tips on How I Cope With Challenges

March 28, 2019
A Vintage Nerd, Vintage Blogger, NYC Blogger, Lifestyle Blogger, Inspirational Blog Post, Coping with Challenges, Inspirational Blogger

Because we are all different we all will cope with challenges differently. Sometimes we can't ignore whats happening to us so at the end of the day its how we deal with difficulties that makes all the difference.

I get asked a lot how I manage with three young kids and a physical disability. I don't have grandparents whisking them away so that I can get a break, their dad works two jobs, and all my friends have their own busy lives. The reality of my day is that they are almost always with me. I don't mind and luckily we enjoy each others company but of course there are days where I feel like I can't cope and I'm about to explode with frustration and exhaustion.

So how to do I cope with the challenges in my life? I'm going to share what has worked for me.

  1. Let go of the small stuff: I used to obsess with cleaning up and having everything perfectly in order when my first was born. I don't anymore. The house isn't a mess but its decently organized and that's okay. 
  2. Ask for help when you need it: I am not a stubborn person but I am prideful and asking for help isn't always an easy thing for me to do. I want to keep my ability to do as much for myself as I can until the day comes when I can't. I also don't want to be a burden but that has changed albeit slowly. I am learning to ask and to accept the help. It's a work in progress.
  3. Take a deep breath: Actually I take a lot of them. When the pain becomes to much, I stop and I take a deep breath. When the kids aren't listening to me, I stop and take a deep breath. When my eyes are getting tired and I can't continue writing, reading, or finishing a movie (three of my favorite things to do), I stop and take a deep breath and try and sleep. Take deep breathes. Breath in and out slowly and think of nothing but that act. It helps. 
  4. Keep things organized: Even if you aren't an organized person, keeping things simple and in some functioning order will help. Purge the clutter, don't over book your calendar, stop trying to juggle everything. Keep your home, your routine, and everything in your environment as simple as you possibly can. This is alway an ongoing process for me. I am in the middle of spring cleaning currently and I still have a ways to go but when stuff is put in its place and things are as clean as can be it makes a lot of things easier. I am also an environment oriented person so an organized home makes a huge difference in how I feel and how I go about my day-to-day activities.
  5. Just say NO: Don't try to please everyone. Try to please yourself first. Sounds selfish? Well, your sanity is key when dealing with daily challenges like health, finances, relationships, etc.
  6. Pace yourself: I have a schedule in my notes section on my phone for every single day. I write every little thing I have to do, have to remember, and hope to do. If I don't get some things done that day I add it to other days. This way I pace myself and try to check off as much as possible and what I didn't do I just try to do another day. 
  7. Go day by day or hour by hour or minute by minute: Some days I am able to think about tomorrow and plan things in my head. Some days so much is coming at me, so much is on my mind, and my body is just completely drained so on those days I go hour by hour. 
  8. Be kind to yourself: Be proud of yourself for the little things you get done. Whether its the laundry or making a phone call or making it to a meeting on time. Be kind to yourself. Also treat yourself to things throughout the day. Your favorite coffee, a 20 minute break to watch a tv show, or a morning at the nail salon. Be kind to yourself.
We all have challenges coming at us in all directions every single day. Some days feel more bearable than others. My challenges challenge me every moment of the day but they are also a big part of who I am. My family, my disability, my lifestyle. I love my life and thats why I make a conscious choice to look at my difficulties as challenges and to face my challenges with as much kindness and patience as I can. How we deal with our challenges makes all the difference. 

Inspirational People of the Past with Disabilities

June 03, 2014
A Vintage Nerd, Living Disabled, Disability Inspiration, Inspirational People with Disabilities, Retro Lifestyle Blog

These five well known people aren't your average run-in-the-mill inspirational folks but rather people who were faced with great mental and physical adversities and despite it all accomplished great feats.

The way the western world handles disabilities is a lot better than the way they used to handle it especially when it came to mental illness. We have come a long way in understanding various challenges, providing help, and showing compassion but I do believe that we still have a long way to go.

The average everyday person has all sorts of challenges from financial to educational to family problems. Everyone has challenges. Everyone.

With that said, take a peak at five inspirational figures that I chose who despite their challenges they never let anyone stop them from being the person they were intended to be.

A Vintage Nerd, Living Disabled, Disability Inspiration, Inspirational People with Disabilities, Retro Lifestyle Blog, Albert Einstein

Albert Einstein has a learning disability and proved to be one of the greatest minds of the 20th Century.
A Vintage Nerd, Living Disabled, Disability Inspiration, Inspirational People with Disabilities, Retro Lifestyle Blog, Frida Kahlo

Frida Kahlo suffered from polio as a child which left her with a misshapen leg. Then when she was was a teenager she survived a horrific accident that left her with a broken back that never fully healed. She would often paint in bed, create while in pain, and never allowed it to devour her.
A Vintage Nerd, Living Disabled, Disability Inspiration, Inspirational People with Disabilities, Retro Lifestyle Blog, Sarah Bernhardt

Sarah Bernhardt was a French stage and film actress who lost her leg after an accident in 1915 and continued to act despite often using a wheelchair while on stage. She has become a world renowned stage icon.
A Vintage Nerd, Living Disabled, Disability Inspiration, Inspirational People with Disabilities, Retro Lifestyle Blog, Helen Keller

Helen Keller who after suffering from an illness at 19 months old became deaf and blind. With the support of her family and Anne Sullivan she would grow up to be a champion of the deaf and blind, a prolific writer, a suffragette, and a political champion.
A Vintage Nerd, Living Disabled, Disability Inspiration, Inspirational People with Disabilities, Retro Lifestyle Blog, Franklin D. Roosevelt Wheelchair

Franklin D. Roosevelt was the only President of the United States of America to be elected into office for four consecutive terms (he passed on during the 4th term). He did all of this from the viewpoint of a wheelchair. Roosevelt contracted polio in 1921 as an adult which left him paralyzed from the waist down. He didn't let that stop him!

He tried all sorts of therapies and wore iron leg braces to enable him to walk short distances. He wanted people to believe he was okay because although his body was weak, his mind was not. He helped the country through the Great Depression and through most of WWII. He truly was a person who didn't let anything stop him!

I think personally I can relate to FDR and Frida the most. The desire to keep your mind active and your creativity flowing despite the pain, discomfort, or weaknesses your body may be going through. I commend these individuals because they somehow found the strength and courage to go beyond what people saw and thought of them and accomplished what the world deemed impossible.


 
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